I am diagnosed with rapid cycling bipolar 1 disorder (which has mania, hypomania, mixed features, depression and mood crashes) with post-traumatic stress disorder (PTSD). I have been in treatment for PTSD for 2 years. I self-advocate as a vulnerable person and survivor and also for the vulnerable. I have trust issues after betrayal from friends and my ex-husband. I have recently found out what some of the lies are against me in a pile of abuse.
Below is a painting I did a few years ago, processing in an elevated/mixed mood episode with bipolar disorder and post-traumatic stress disorder (PTSD). Hot Air: Rise Above It. I wrote a story to go with it, intended as children's stories but it is also for adults. I might develop it further if I want something to do (already have lots of creative projects). I have published exactly how I wrote it in a single session including notes and mistakes below (with no alterations). This is the first draft that hasn't been composted yet. The story came to me after doing the painting.
My brain is currently struggling to be organised enough to speak or write, so I will probably keep this short. Because I am exhausted and I have been getting breakthrough mania and mixed episode symptoms. And also because I am waiting for sedation to kick in enough for me to go back to sleep as emergency self-care.
I have finally started trauma therapy at the age of 46 after suffering PTSD since I was a child and untreated bipolar disorder since my teens. I was misdiagnosed with 'treatment resistant depression' and in my twenties I was started on antidepressants which can (and did) trigger mania. Yet I still went incorrectly diagnosed until my forties. This journey for me has had a lot of suffering. I have had some extremely painful experiences physically, but the psychological pain has far outweighed extreme physical pain (that morphine hardly took the edge off).
Recently, news of teenager Noa Pothoven's death has been circulating on social media. Noa suffered from PTSD and anorexia after sexual trauma. The English-speaking media misrepresented the cause of her death, saying it was 'legal euthanasia,' which was not true. Pro-euthanasia campaigners jumped on this story. Noa died after refusing to eat or drink. She described her suffering from trauma as 'I breathe but I am no longer alive.'
I can understand that, as I felt like I have 'died' from sexual trauma as a child and again as an adult. The reason I legally changed my name was because my former name became a trauma trigger - I would have flashbacks re-experiencing trauma when anyone said my former name. Changing my name was part of trying to survive. Up until the effects of the adult sexual trauma, I had been surviving by 'shutting down' - the childhood form of PTSD. Plus avoiding. Then it morphed into something very complex with the co-morbid mania and depressive episodes of bipolar 1 disorder.
There is currently a euthanasia debate in New Zealand and I have found it to be very triggering. I have been tearful and withdrawn and dissociating. I know the reasons why it is triggering for me. One of the reasons is connected to the death of a beloved pet cat, Tommy who was severely injured in an accident at the time I was sexually abused as a child. The vet said he would suffer in extreme pain for the rest of his life if we tried to keep him alive. I am still processing that loss, but now as an adult, I would have still chosen euthanasia for a pet with the extent of injuries that Tommy had. I have written a book (still editing it) called Pet Purpose and these are some of the central themes - suffering and loss and trying to survive with trauma and bipolar disorder.
I do not see the topic of euthanasia as black and white. I have been grateful for that option when pets have suffered terribly at the end of their lives. To me, it would have been cruelty to let my pets die a 'natural' death when they were suffering so much.
People have asked for it as a compassionate choice for humans, so I am not opposed to giving them that choice for certain situations. There are valid concerns for the vulnerable but I do not see it as being compulsory. Noa was refused euthanasia and told to complete her trauma therapy and wait until she was an adult. Noa felt she could not wait that long.
Every day, I make a choice to stay alive. Part of staying alive is finding meaning in life (and religion does not give me that meaning - it is another trigger - for example people telling me I needed demons cast out of me and that I would go to hell if I killed myself). It takes courage to live with bipolar disorder and PTSD. Bipolar disorder and PTSD both have a much higher suicide risk than the general population.
Recently I painted a self-portrait - my first since I was a teenager. I called it Painting Courage. I chose a selfie where I had a convincing smile as a reference photo. I can mask a lot of the time. I can smile and people think I'm fine. I can usually mask that I have invisible disabilities and that I am still processing a lot of pain.
For me, painting semi-realistically takes courage too. Lately, I have been doing that as I have been having trauma therapy. It was a very long process to be finally approved for therapy. I continue to hope that things will improve.
I intend to get back to completing my book, but I feel afraid and anxious at times about publishing it because the themes are very personal. Even though I have changed the story-line, the essence and emotions of my story are still in there. But for a while there, writing the book was one thing that gave me a sense of purpose. My wanting to help people understand some of what it is like to suffer from bipolar and PTSD. To try to survive.
Today I burned 15 journals I'd filled during a bipolar mania episode nearly two years ago. I flicked through them and condensed the essence of the journals into one page of some of what mania with trauma was like. I have been diagnosed with bipolar 1 disorder and post-traumatic stress disorder (PTSD) and they amplify each other. I was back on medications but it took MONTHS to try to get the mania under control. I've summarised some of what it was like below, based on skim-reading the journals before I burned them:
Today I burnt 15 journals. Journals I had written during months of a mania episode after going back on medications for bipolar 1 disorder two years ago. I was encouraged by my psychiatrist to journal rather than blurt out all my disjointed thoughts on Facebook. So I filled over 20 books, mostly school exercise books and scrapbooks with colourful scribblings, often in felt tip pen rather than biro.
I had felt an extreme need to express myself at the time. I understood what I wrote, but it would have been complete nonsense to anyone else. Trauma was a recurring theme in amongst all the mind-maps, associations and symbolism. I was trying to process my trauma and calm my racing brain. Often my brain was racing too fast and was too disorganised to write, so I painted brightly coloured abstracts instead.
I had a therapy session last week for PTSD. When I first started therapy, my emotions were shut down and I talked about trauma like I was a news reporter - factual without emotion. But last time I cried and cried.
I said, "I'm such a failure - failed in my career, can't work full-time, divorced, hardly see my son, own practically nothing."
The psychologist replied, "You're not a failure. You have bipolar disorder and trauma which has made things very difficult for you. You've been doing the best you can."
My mood has been very low the past three weeks with depression. It seems to coincide with reducing then withdrawing one of my medications for bipolar disorder. One of the worst things about depression for me is the suicidal thoughts. Then not finding pleasure in anything - except chocolate - I self-medicate eating chocolate.
Sleep disturbances are common with bipolar disorder and post-traumatic stress disorder (PTSD), both of which I've been diagnosed with. I suffer from sleep paralysis and sleep-related hallucinations, which have become more frequent in the past few years. Sleep paralysis is when you wake up but can't speak or move. Hallucinations are sensing things that aren't really there - seeing, hearing, feeling. Sleep-related hallucinations occur in the transition between being awake and asleep. Hypnagogic hallucinations occur when falling asleep. Hypnopompic hallucinations occur when waking up.
One thing that is a common theme when talking to other people with bipolar disorder and PTSD is loss. Loss of a spouse, career, income, house, children, friends, dignity. I lost all of those. I am still processing the devastating loss after a pre-diagnosed bipolar mania episode. The sun went down on me in Australia. Most painful of all for me was that I had no choice but to leave my son in Australia and return to my birth country of New Zealand.
Xanthe finds creative expression including writing and painting to be therapeutic and helps her to manage her diagnoses of bipolar disorder and post-traumatic stress disorder (PTSD).